Specialized Caregiving Organizations

Alzheimer’s Disease

Alzheimer’s Association

70 E. Lake Street

Chicago, IL 60601

(312) 853-3060

(800) 621-0379

This voluntary organization sponsors public-education programs and offers supportive services to patients and families who are coping with Alzheimer’s disease. Its twenty-four-hour toll-free hotline provides information about Alzheimer’s disease and links families with nearby chapters, which are familiar with community resources and can offer practical suggestions for daily living.

John Douglas French Foundation for Alzheimer’s Disease

11620 Wilshire Boulevard

Los Angeles, CA 90025

(310)  470-5462

(800) 537-3624

This organization funds research to find a cure for Alzheimer’s disease and works with hospitals and other institutions to create facilities to care for individuals with Alzheimer’s disease and related disorders. Its center in Los Alamitos, California, offers long-term care exclusively to individuals with Alzheimer’s disease and related disorders. The centers are planned in Massachusetts, Michigan, Minnesota, Ohio, Oregon, Pennsylvania, and Texas.

Arthritis

Arthritis Foundation

1314 Spring Street NW

Atlanta, GA 30309

(404) 872-7100

(800) 283-7800

This foundation is a voluntary organization with a nationwide program committed to examining the cause and cure for arthritis and to improving treatments for arthritic patients. Services offered included public information and education about arthritis (through a variety of publications and referrals to specialists) and community activities clinics and rehabilitation and home-care programs.

American Cancer Society

1599 Clifton Road

Atlanta, GA 30329

(404) 320-3333

(800) 227-2345 Information Services

This is a voluntary organization that funds research to find a cure for cancer and carries out programs to educate the public and health professionals about cancer prevention, detection, treatment, and research. All local chapters sponsor a wide range of services for cancer patients and their families, including self-help groups, transportation programs, and limited financial aid.

National Cancer Institute

Office of Cancer Communications

9000 Rockville Poke, Building 31, Room 10A24

Bethesda, MD 20892

(301) 496-5583

(800) 422-6237

This is a federal agency for funding cancer research and for distributing information about cancer to health professionals and the public. The Cancer Information Service staff can also answer your questions or refer you to the nearest cancer center.

Caregiving

Children of Aging Parents

2761 Trenton Road

Levittown, PA 19056

(215) 945-6900

This nonprofit, self-help organization provides a variety of services, including starter packages for those interested in becoming caregivers, a “matching” services for people starting a support group, workshops for the general community, and printed material. It also distributes a monthly newsletter. Caregivers nationwide can contact the information and referral services to learn about local resources.

National Shut-In Society

225 W. 99th Street

New York, NY 10025

(212) 222-7699

This society is a private, nonprofit organization whose members work to bring comfort and support to housebound individuals. Members of the society offer written correspondence and telephone communication to those who are chronically disabled and housebound. Some local chapters have wheelchairs, walkers, hospital beds, and other medical equipment to lend to members.

Dementia Society of America

PO Box 600

Doylestown, PA 18901

1-844-336-3684

This society is a leading all-volunteer, all-Dementias nonprofit charity… the Dementia Society of America.  You will find the basic Dementia information. It is here for you, collected from top resources across the country, and around the globe.

Dental Health American Dental Association

Division of Communications

211 E. Chicago Avenue

Chicago, IL 60611-2678

(312) 440-2500

This is a professional organization that works to improve the dental health of the public and to promotes the art and science of dentistry. Some state dental associations offer a number of free or low-cost services for older people.

Diabetes

American Diabetes Association

1660 Duke Street

Alexandria, VA 22314

(703) 549-1500

This is a voluntary organization that supports research to find a cure for diabetes and seeks to improve the well-being of people with diabetes and their families. They provide information about the diagnosis and treatment of diabetes and about resources available to individuals with this disease.

American Dietetic Association

216 W. Jackson Boulevard, Suite 800

Chicago, IL 60606-6995

(312) 899-0040

This organization is a professional society of dietitians who work in the health-care settings, schools, day care centers, business, and industry. It offers Spanish and English programs for nutrition professionals to teach the basics of nutrition, weight loss, and diabetic meal planning. Members provide direct nutrition counseling to older persons or indirect assistance through state and local meal programs such as area agencies on aging, meals-on-wheels programs, home health agencies, and other health-care facilities focusing on the special nutritional needs of older people.

National Diabetes Information Clearinghouse

Box NDIC

9000 Rockville Pike

Bethesda, MD 20892

(301) 468-2162

This organization is part of the National Institutes of Health. It offers pamphlets on all aspects of diabetes to health professionals, patients, and the general public. Furthermore, it also distributes materials created by other organizations, as well as a publications list.

Foot Care

American Podiatric Medical Association

9312 Old Georgetown Road

Bethesda, MD 20814

(301) 571-9200

This organization is a professional society of doctors who specialize in diagnosing and treating foot injury and disease. Podiatrists make special devices to correct foot problems, provide care for nails, prescribe certain medications, and perform foot surgery.

Health National Health Information Clearinghouse

Post Office Box 1133

Washington, DC 20013

(703) 522-2590

(800) 336-4797

The clearinghouse will help locate resources important to health information; specific questions about health are referred to appropriate experts or other federal agencies.

Hearing

Hearing Impairment Alexander Graham Bell Association for the Deaf

3417 Volta Place NW

Washington, DC 20007

(202) 337-5220 (Voice or TTY)

This organization offers a variety of educational brochures, books, and videos.

American Speech-Language-Hearing Association

10801 Rockville Pike

Rockville, MD 20852

(301) 897-5700 (Voice/TTY) (800) 638-8255 (Voice/TTY)

This nonprofit organization distributes literature and referral lists to provide assistance with hearing, speech, and language problems. It can provide a list of centers for demonstrating assistive listening devices and a list of public places that are equipped with such devices.

Hearing Industries Association 1800 M Street NW Washington, DC 20036

This organization represents firms that manufacture or distribute hearing aids, components, and health-care products. It produces and distributes publications on hearing aids and their proper use.

National Association for the Deaf

814 Thayer Avenue

Silver Springs, MD 20910

(301) 587-1788 (Voice/TTY)

This private nonprofit membership association serves as an advocate for all deaf and hearing-impaired individuals. It can supply brochures, catalogs, and referral lists of organization around the country that provide services to individuals who are deaf and their families.

National Captioning Institute

5203 Leesburg Pike, Suite 1500

Falls Church, VA 22041

(703) 998-2462 (Voice/TTY)

This is a nonprofit organization that provides captions for commercial, cable, and public television and home video manufacturers. It manufactures and distributes closed-captioned decoders for televisions. Information and publications are available upon request.

National Hearing Aid Society

20361 Middlebelt Street

Livonia, MI 48152

(313) 478-2610

(800) 521-5274 Hearing Aid Helpline

This is a professional organization of hearing-aid specialists.

High Blood Pressure

National High Blood Pressure Information Center

4733 Bethesda Avenue #530

Bethesda, MD 20814

(301) 951-3260

The center is operated by the National Heart, Lung, and Blood Institute of the National Institutes of Health and provides information relating to research on the causes, prevention, methods of diagnosis, and treatment of high blood pressure and information about programs on hypertension.

Incontinence

Help for Incontinent People

PO Box 544

Union, SC 29379

(803) 585-8789

This is a self-help and patient advocacy group that offers encouragement, information, and resource listings for the public, health professionals, and incontinent individuals about the prevalence, diagnosis, and treatment of urinary incontinence.

Legal

American Bar Association Commission on the Legal Problems of the Elderly

1800 M Street NW, 2nd Floor, South Lobby Washington, DC 20036

(202) 331-2297

This association analyzes and responds to the legal needs of older people in the United States. It works to improve the quality and quantity of legal services for older citizens and refers requests for services to the appropriate agencies or groups.

National Senior Citizens Law Center

2025 M Street NW, Suite 400

Washington, DC 20036

(202) 887-5280

This organization is a public-interest law firm with attorneys who specialize in areas of federal law having an impact on older people. It serves as a clearinghouse of information about legal problems that affect the elderly, including problems with social security, age discrimination, pension plans, Medicaid, Medicare, nursing homes, and consumer products. Other services include consulting services, data compilations, and referrals to other sources of information.

Long Term Care

Housing/Long-Term Care American Association of Homes for the Aging

1129 20th Street NW Suite 400

Washington, DC 20036

(202) 296-5960

This is a national organization whose members include nonprofit nursing homes, independent housing facilities, continuing care facilities, and homes for the aging.

Medications

AARP Pharmacy Service

PO Box NIA

1 Prince Street

Alexandria, VA 22314

This organization will provide information on common prescription drugs, side effects, and cost differences between brand name and generic drugs. Leaflets for many medications are available.

Food and Drug Administration

Legislative, Professional, and Consumer Affairs Branch Division of Regulatory Affairs

Center for Drugs and Biologics 5600 Fishers Lane

Rockville, MD 20857

(301) 295-8012

This federal office can answer questions about drug approval, drug reactions, and other issues concerning new or approved medications.

Nutrition Food and Drug Administration

Office of Consumer Affairs

5600 Fisher Lane #1663

Rockville, MD 20857

(301) 443-3170

This organization established federal regulations concerning the safety and effectiveness of food products and additives, human and veterinary drugs, cosmetics, products that emit radiation, and medical devices. It offers free consumer education materials on nutrition.

U.S. Department of Agriculture Human Nutrition Information Services 6505 Belcrest Road #360

Hyattsville, MD 20782

(301) 436-8617

This organization offers free consumer education materials on nutrition.

Nursing Home Information Service

National Council of Senior Citizens

National Senior Citizens Education and Research Center 925 15th Street NW

Washington, DC 20005

(202) 347-8800

This information service is a referral center for consumers of long-term care services. It offers information on nursing homes, alternative community and health services, and how to select a nursing home.

Osteoporosis

Arthritis Foundation

1314 Spring Street NW

Atlanta, GA 30309

(800) 283-7800

This organization offers free publications on osteoporosis information and referrals.

Melpomene Institute for Women’s Health Research

2125 E. Hennepin Avenue Minneapolis, MN 55413

(612) 378-0545

This organization offers materials and videotape rentals for osteoporosis.

Safety

National Safety Council

444 N. Michigan Avenue

Chicago, IL 60611-3991

(312) 527-4800

This organization offers pamphlets and programs on many aspects of health and safety.

Stress

American Institute on Stress

124 Park Avenue

Yonkers, NY 10703

(914) 963-1200

This organization offers materials and information relating to stress.

National Institute on Mental Health

5600 Fishers Lane, # 15C-05

Rockville, MD 20857

(301) 443-4517

This organization offers information on help groups, mutual help groups, and support groups.

Stroke

National Stroke Association

300 E. Hampden Avenue, Suite 240

Englewood, CO 80110

(303) 762-9922

This association provides information about strokes to the general public and health professionals and offers supportive services to stroke survivors and their families. It supports self-help services for those recovering from a

stroke and their families and offers guidance to those interested in forming stoke clubs and support groups.

Vision

American Council of the Blind

1010 Vermont Avenue NW, Suite 1100

Washington, DC 20005

(202) 393-3666

This organization seeks to improve the living conditions of people who are blind and individuals with visual impairments.

National Society to Prevent Blindness

500 E. Remington Road Schaumburg, IL 60173

(708) 843-2020

(800) 221-3004

This organization offers a variety of brochures on eye problems. Its National Center for Sight toll-free information line provides information on a broad range of eye health and safety topics.